European Patient Summit on Pulmonary Fibrosis (PF) 2021

Attend the the first-ever European Patient Summit on Pulmonary Fibrosis (PF) and Interstitial Lung Diseases (ILDs) driven by patients.

SAVE THE DATES 23-25 April 2021

Pulmonary Fibrosis Summit 2021

Latest news

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RareConnect launches online community for people…

17-02-2021

Hosted by trusted patient advocates, RareConnect is a place where rare disease patients can connect with others globally.

News

Fourth EU-IPFF webinar on 17 March 2021

11-02-2021

Dr Marlies Wijsenbeek (Erasmus University, Rotterdam) will talk about “Optimising quality of life in patients with pulmonary fibrosis” , moderated by…

News

Video from webinar on Genetics in ILD - Genotypes,…

09-02-2021

Another well visited EU-IPFF webinar - this time on Genetics in ILD - Genotypes, Phenotypes and the Future. Please also find the link to the survey…

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Pulmonary Fibrosis

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Alice's story

19-01-2021

Pulmonary Fibrosis (PF) is a progressive, irreversible, chronic disease of the lungs, which currently affects between 80,000 and 111,000 people in…

Clinical Trial Finder

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Finding trials

08-01-2021

Finding a Trial To help you find clinical trials that may best suit your particular needs, use the filters on the left-hand side of the page below. …

Consultation Guide

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Consultation Guide

19-01-2021

Since Pulmonary Fibrosis is a rare disease, you may feel isolated or alone after your diagnosis. Pulmonary Fibrosis patient associations and groups…

EU-IPFF brings together European national patient associations committed to defending their vision of equal access to treatment and care for all PF patients, regardless of geography, socio-economic status or age.

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European Patient Summit on Pulmonary Fibrosis (PF) 2021

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Pulmonary Fibrosis

Clinical Trial Finder

Consultation Guide

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