Welcome to the European Pulmonary Fibrosis Federation website
With 21 member organisations representing countries all over Europe, who unite their voices in the European organisation sharing experiences, sharing knowledge and communicating about PF care and treatment in the various countries the European Pulmonary Fibrosis Federation creates impact and influence on how the individual country handles the disease.
We serve as the trusted resource for a united PF patient voice by raising awareness, providing disease education, advancing care, and funding research.
EU-IPFF Activities 2021
In January & February 2021 the EU-IPFF Secretariat organised a series of training sessions associated with the publication of the second edition of the EU-IPFF Benchmarking Report and Country Reports. The purpose was to ensure that the participants, members of EU-IPFF through their respective country organisations, understand and can deploy the Benchmarking Report and the respective Country Reports in their local policy work. The Benchmarking Report and the associated toolkit provide information and recommendations for evidence-based advocacy work both in scientific research and health policy.
In April 2021 EU-IPFF hosted #PFSUMMIT2021 - the first virtual Pulmonary Fibrosis Summit for patients made by patients.
Read more and find presentations and abstracts etc. here here
In June 2021 EU-IPFF announced the Advocate Development Program (ADP) a training programme is for EU-IPFF members and associate members and takes 10 months (from end June 2021). Read more here
September is the Pulmonary Fibrosis Awareness month, where EU-IPFF during the PF/IPF awareness week each year runs a campaign.
This year the awareness week takes place from 18-25 September and during this week as well as before and after EU-IPFF will continue to raise awareness of the disease, its implications, treatment, quality of life and more. We will keep you updated here.