mobilemenuClose menu

September is Pulmonary Fibrosis Awareness Month

What is PF?

Pulmonary Fibrosis (PF) is a progressive, irreversible, chronic lung disease causing scarring of the lung tissue with no known cure. In Europe it currently affects more than 300,000 people with over 50,000 losing their lives to PF each year. The most common type of PF is Idiopathic Pulmonary Fibrosis (IPF), accounting for 200,000 patients in Europe. The average life expectancy following diagnosis of PF or IPF is about three to five years, with a better prognosis depending on early diagnosis and adequate treatment.

Breathing Life

Despite PF being a fatal disease, there is still a lack of awareness, which can result in late diagnosis, losing valuable treatment time and, above all, time to enjoy life. Therefore, we join the PF Awareness Month using the slogan Breathing Life to draw attention to PF, its implications and the changes it brings about in daily life as well as the physical and psychological strain that the disease places on patients and their loved ones. In the week running from 18-25 September we focus especially on IPF. We also want to focus on the essential moments of lightness, normalcy and happiness that people with PF still experience despite the burden of the disease.

How can I help raise awareness of PF?

We would like your help for this and would like to ask you and everyone affected by this disease in any way – patients, carers, clinicians, researchers and others – to join us and the community to share their stories on social media using both #BreathingLife and #PFMonth during the PF Awareness Month in September as well as our IPF Awareness Week running from 18 to 25 September. For more information, ongoing updates and content in the run-up to PF Awareness Month, please keep an eye on this website. https://www.eu-ipff.org/awareness

Visuals and videos from PF Awareness campaign 2020

Pulmonary Fibrosis Awareness in general

EU-IPFF works in various ways to raise awareness of Pulmonary Fibrosis. We conduct awareness campaigns, develop material for carers, doctors and patients, arrange webinars and summits with professionals and specialists sharing their research, thoughts, knowledge and enthusiasm to really make a difference for people affected by PF.

Webinars

A series ofEU-IPFF webinars. Everybody can join to meet professionals presenting and discussing the most relevant topics.

Patient Summits

Bringing together patients, healthcare professionals, policy makers and industry representatives.

#MyPFstory

People affected by PF sharing their stories

Benchmarking Report

The EU-IPFF have developed two editions of its benchmarking report to compare diagnistics, treatment and care of PF patients all over Europe.

The consultation guide

We develop material for doctors, carers and patiemts - the Consultation Guide is an example

IPF Charter

The aim of the Patient Charter, a patient–physician initiative, was to develop better care based on perceptions of patient advocacy groups regarding inequalities and unmet needs in IPF care

EU IPFF

Search