September is Pulmonary Fibrosis Awareness Month
What is PF?
Pulmonary Fibrosis (PF) is a progressive, irreversible, chronic lung disease causing scarring of the lung tissue with no known cure. In Europe it currently affects more than 300,000 people with over 50,000 losing their lives to PF each year. The most common type of PF is Idiopathic Pulmonary Fibrosis (IPF), accounting for 200,000 patients in Europe. The average life expectancy following diagnosis of PF or IPF is about three to five years, with a better prognosis depending on early diagnosis and adequate treatment.
Despite PF being a fatal disease, there is still a lack of awareness, which can result in late diagnosis, losing valuable treatment time and, above all, time to enjoy life. Therefore, we join the PF Awareness Month using the slogan Breathing Life to draw attention to PF, its implications and the changes it brings about in daily life as well as the physical and psychological strain that the disease places on patients and their loved ones. In the week running from 18-25 September we focus especially on IPF. We also want to focus on the essential moments of lightness, normalcy and happiness that people with PF still experience despite the burden of the disease.
How can I help raise awareness of PF?
We would like your help for this and would like to ask you and everyone affected by this disease in any way – patients, carers, clinicians, researchers and others – to join us and the community to share their stories on social media using both #BreathingLife and #PFMonth during the PF Awareness Month in September as well as our IPF Awareness Week running from 18 to 25 September. For more information, ongoing updates and content in the run-up to PF Awareness Month, please keep an eye on this website. https://www.eu-ipff.org/awareness
Visuals and videos from PF Awareness campaign 2020
Pulmonary Fibrosis Awareness in general
EU-IPFF works in various ways to raise awareness of Pulmonary Fibrosis. We conduct awareness campaigns, develop material for carers, doctors and patients, arrange webinars and summits with professionals and specialists sharing their research, thoughts, knowledge and enthusiasm to really make a difference for people affected by PF.