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Pulmonary Fibrosis Awareness in general

Pulmonary Fibrosis (PF) is a progressive, irreversible, chronic lung disease causing scarring of the lung tissue with no known cure. In Europe it currently affects more than 300,000 people with over 50,000 losing their lives to PF each year. The most common type of PF is Idiopathic Pulmonary Fibrosis (IPF), accounting for 200,000 patients in Europe. The average life expectancy following diagnosis of PF or IPF is about three to five years, with a better prognosis depending on early diagnosis and adequate treatment.

EU-IPFF works in various ways to raise awareness of Pulmonary Fibrosis. We conduct awareness campaigns, develop material for carers, doctors and patients, arrange webinars and summits with professionals and specialists sharing their research, thoughts, knowledge and enthusiasm to really make a difference for people affected by PF.

Webinars

A series ofEU-IPFF webinars. Everybody can join to meet professionals presenting and discussing the most relevant topics.

Patient Summits

Bringing together patients, healthcare professionals, policy makers and industry representatives.

#MyPFstory

People affected by PF sharing their stories

Benchmarking Report

The EU-IPFF have developed two editions of its benchmarking report to compare diagnistics, treatment and care of PF patients all over Europe.

The consultation guide

We develop material for doctors, carers and patiemts - the Consultation Guide is an example

IPF Charter

The aim of the Patient Charter, a patient–physician initiative, was to develop better care based on perceptions of patient advocacy groups regarding inequalities and unmet needs in IPF care

Pulmonary Fibrosis Awareness Month 2021

 

Thanks for joining PF Awareness Month and IPF Awareness Week and helping raise awareness!

 

 

Visuals and videos from PF Awareness campaign 2020

PF scars your lungs

Making breathing and everyday activities a struggle

Alice's story

Every year, additional 30,000-35,000 new patients will be diagnosed with PF

Alberts Story

I am lucky to be on the active list of patients awaiting transplantation

Sponsors of #BreathingLife campaign 2021
EU IPFF

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