News
There is joy in small things, don't give up on life." (Chantal Vandendungen)
“We have seen that we’re moving towards trials which are more inclusive of patients with any form of PF. That change will make it easier for patients…
By sharing their perspectives and individual experiences, patients can contribute significantly to the work of researchers as well as clinicians: …
“Several lines of evidence imply that in IPF progression, acute respiratory deterioration including acute exacerbation and mortality are associated…
#PF Patients need better and quicker access to psychological support: “I had panic attacks, I couldn’t do my job as well and it also had a financial…
“To improve and personalise treatment of IPF, we should also include patient perspectives and Quality of Life.” Read more about “Integrating Patient…
“It is very important that patients and clinicians work together. The EU has a tradition of supporting research in rare diseases.” (Liam Galvin)
• to be involved in research and be partners at eye level • for their advocates to have unrestricted access to scientific congresses • better…
