News
#PF Patients need better and quicker access to psychological support: “I had panic attacks, I couldn’t do my job as well and it also had a financial…
“To improve and personalise treatment of IPF, we should also include patient perspectives and Quality of Life.” Read more about “Integrating Patient…
#PF patients and carers need better support and guidance in adapting their lives to a new situation and changed needs: “We tried to simplify our…
#lung #transplant recipient Roberto shares his experience and a message of positivity with the PF# community around the world!
Compared to other serious diseases, there is still a lack of awareness of #PF, which is why patients with PF often feel misunderstood: “Anxiety for…
At the end of #IPF Awareness Week we want to thank all of you for your commitment, sharing and contributing to our common cause and raising awareness!…
“Do not lose time.” Our member organisation The Hellenic Pulmonary Fibrosis Association with an urgent appeal to all those who show symptoms such as…
Our Australian friends made this video about Bill Van Nierop in 2019
Ron’s message to healthcare professionals: “Reassure the patient it’s okay to feel low. There is now shame in seeking help. Put them in touch with…
