EU-IPFF GDPR policy

19-01-2021

The EU-IPFF, a non-profit body that brings together European national patient associations to fight for equal access to treatment and information. Established in 2016, the EU-IPFF has grown from a newly established association to a trusted resource for the European IPF community.

In agreement with General Data Protection Regulation, EU-IPFF will collect the following information during registration for membership, newsletters and participation in EU-IPFF arranged webinars, seminars, summits etc.: first name, last name and e-mail address and whether you are a patient, patient advocate, carer or health care professional.

The data will solely be used for these purposes and subsequent arrangements of the EU-IPFF and are stored for a limited time.

Consent for use of your data for those purposes can be withdrawn any time by an email to secretariat@eu-ipff.org.