EU-IPFF works together to change the landscape of IPF in Europe.
The activities we undergo vary from policy to patient centric tools
In April 2016, a Written Declaration on IPF was launched with the support of 16 Members of the European Parliament (MEPs). The Declaration aims to promote better cooperation between EU Member States to address existing health inequalities and promote research activities to find its cause and a cure. It encourages the European Commission and EU Member States to work together to support timely access to treatment, to limit the delays in approval by national regulators of authorised medication, and to address the existing inequalities in access to lung transplantation.
Collaboration With Policy-Makers
It is of essence for the IPF community to build strategic relationships on both a European level and a national level, therefore MEP one-on-one meetings as well as roundtable discussions have proven to be of great value. For the past years, our national IPF patient groups have met with their local MEPs during parliamentary workshops to build relationships that would have a lasting impact in their country. In addition, together as EU-IPFF we are currently building relationships with both the European Commission and European Council.
EU-IPFF Benchmarking Report
This 2018 EU-IPFF Benchmarking Report on Access to IPF Care in Europe is an important accomplishment for our community.
The comparison of care standards identifies best practices to be encouraged and gaps to be filled, as well as proposing concrete solutions to improve patients’ quality of life. The resulting conclusions will propel policy asks to ensure a high level of quality care across Member States. Ultimately, we hope that this report can inform decision-making at every level