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Consultation Guide


Since Pulmonary Fibrosis is a rare disease, you may feel isolated or alone after your diagnosis. Pulmonary Fibrosis patient associations and groups can have a huge impact on you and provide a platform for other patients and carers to share advice and experience with you, your family and friends. We have included contact details for relevant associations in section 13. In addition, we have also included patient and carer stories to provide a first-hand experience on the different subjects mentioned in this guide. These stories are clearly differentiated in the text. We hope this guide is useful to you, your family and friends, or anyone you know who has recently received a diagnosis of IPF. We welcome any suggestions for information that should be included in this guide – please get in touch (

We will produce the guide in different languages, which will be uploaded to the website as soon as they are ready

Consultation Guide