A Snapshot of IPF Care in Europe

The EU-IPFF Benchmarking Report

National IPF patient organisations have capitalised on this growing political focus, joining hands to drive policy change together. The European Federation on Idiopathic Pulmonary Fibrosis & Related Disorders Federation (EU-IPFF) was established in 2016 to improve the care and the quality of life of IPF patients across the EU. Already we have developed the first European IPF Patient Charter and successfully encouraged the adoption of a Written Declaration by the European Parliament.

This 2020 EU-IPFF Benchmarking Report on Access to IPF Care in Europe is another important accomplishment for our community. The comparison of care standards identifies best practices to be encouraged and gaps to be filled, and also proposed concrete solutions to improve patients’ quality of life. The resulting conclusions will propel policy asks to ensure a high level of quality care across Member States.

The Benchmarking Report is produced in different languages - which will be uploaded to the site.

Please find link to the english version of the Benchmarking Report below