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EU-IPFF Benchmarking Report 2020


The content of the Benchmarking Report represents the views of the authors only and is their sole responsibility.

The 2020 Benchmarking Report is the second edition, and includes four additional countries in the analysis.

This Report is not intended as an exhaustive or scientific review of the care and management of IPF in Europe.

The interviews on which this Report is based have provided useful insights into some of the issues affecting a selection of patients living with IPF and their families.

They also supported the identification of several discrepancies in IPF care within and between European countries.

Recognising that the Benchmarking Report only represents a snapshot of the IPF landscape in seventeen EU countries, the EU-IPFF welcomes feedback.

For more information or to share any concerns or comments you may have, please contact:

The EU-IPFF remembers Harry van der Haak and Maria Rigo who sadly passed away while we were working on this update.

Their comments remain within the report with our gratitude for their inspiring advocacy work on behalf of their patient communities in Netherlands and Hungary.

Boehringer Ingelheim International GmbH, F. Hoffmann-La Roche LTD and Galapagos NV financially supported the Benchmarking Report.

EU-IPFF Benchmarking Report 2020