Idiopathic Pulmonary Fibrosis is a rare pathology and is not well known.
And just to step out of the shadows, the European IPF Charter was presented yesterday at the EU Parliament. The initiative has been promoted by 11 patient organizations and will be discussed on occasion of the IPF World Week. Their aim is to raise awareness of this fatal condition and promote better access to care for patients in Europe. Firstly, by collecting 35,000 signatures in representation of the number of new cases diagnosed every year in Europe. Idiopathic Pulmonary Fibrosis, that hits mainly people aged over 65, is a progressive and irreversible chronic lung disease. In those affected, the normally thin and pliable tissue of the lungs becomes increasingly thick and prevents oxygen from moving into the bloodstream, thereby leading to a continuous decline in lung function. In Europe, there are currently between 80,000 and 110,000 people living with IPF and an approximate 35,000 people are newly diagnosed every year.