The European Reference Network
The European Reference Network (ERN) aims to connect highly specialised healthcare professionals across EU Member States and to thereby improve access to diagnosis, treatment and provision of high quality healthcare for patients with rare diseases or conditions that require a concentration of resources, expertise and knowledge. ERN-LUNG (European Reference Network on Rare Pulmonary Diseases) covers a wide range of rare lung diseases and features a sub-group on interstitial lung diseases that also includes IPF. EU-IPFF works together with ERN-LUNG as an ePAG: an elected patient representatives who will ensure that the patient voice is heard throughout the ERN development process. The aim is to ensure that IPF diagnosis, care and treatment options is unified across Europe and that patients are able to live their lives to the fullest.
