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Call for recruitment for European Patient Advocacy Groups (ePAGs)

Call for recruitment for European Patient Advocacy Groups (ePAGs)

27-05-2022

EURORDIS wants patient organisations to participate in European Reference Network (ERN) decision-making processes and is supporting its membership

EURORDIS has developed a European Patient Advocacy Group (ePAG) for each ERN disease grouping, including lung diseases. The ePAGs will bring together elected patient advocates and affiliated organisations who will ensure that the patient voice is heard throughout the ERN development process.

European Patient Advocacy Groups are open to rare disease patient organisations (EURORDIS members and non-members) operating in any of these European countries.

At the moment, we specially encourage applications from:

  • Patient organisations from Eastern and Northern European countries;
  • Patient organisations covering rare lung diseases, please see this list.

For more information on ERNs and the role of ePAG advocates you may watch this video and read this short guide.

The recruiting period runs from 25th May to 31st July 2022.

Are you interested in designating a patient representative to get involved in the European Reference Networks (ERNs) as an ePAG advocate? For information on the specific requirements for Patients Organisations to apply, the required skills and experience for candidates and the application process, please contact lenja.wiehe@eurordis.org or you may reach out to the ePAG leads in ERN LUNG

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