Consultation guides to Patients and Health Care Professionals
The European Pulmonary Fibrosis Foundation has updated the original EU-IPFF Consultation Guide: A guide to living with Idiopathic Pulmonary Fibrosis, published in 2018. The updated version consists of two separate guides – one for patients as a guide to living with Pulmonary Fibrosis and one for Health Care Professionals as a guide to treating Fibrotic Interstitial Lung Diseases (ILD’s).
The well-illustrated sixteen pages patient guide is a comprehensive, easy to overview and read guide with helpful information and useful links. The guide explains what Pulmonary Fibrosis is, symptoms, risk factors, diagnosis, and available treatments – both drug-based and non-drug-based as for instance lung transplantation, oxygen treatment and Pulmonary Rehabilitation. An important part of this guide is a section on self-care. What can you do yourself when you have Pulmonary Fibrosis to achieve the best quality of life? Read about nutrition, activity levels, smoking, avoiding stress, how to relax, how to adapt your home to the situation and more. Also, the guide covers subjects as psychological support and advice to carers as well as a section on the benefice of patient support groups.
The guide to treating Pulmonary Fibrosis aims at helping Health Care Professionals understand Fibrotic Interstitial Lung diseases with prevalence, symptoms, predisposing factors, diagnosis, treatment, and care. The guide provides useful scientific references and links. Also, the guide contains an overview of how people with Fibrotic Interstitial Lung Disease can take care of themselves as well as the role of psychologists and patient support groups.
The consultation guide for HCPs and for Patients is presented in full video versions, and also in short video clips. Please find the videos here.