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Europe’s Action Plan for Rare Diseases debated in the European Parliament

Europe’s Action Plan for Rare Diseases debated in the European Parliament

26-11-2021

The @eu-ipff alongside @eurordis and the European #raredisease patient community for the @eucommission to adopt Europe's Action Plan for Rare Diseases

On 24 November members of the European Parliament debated rare diseases, calling upon the European Commission to introduce a new comprehensive, cross-cutting, and person-centred policy framework for rare diseases in Europe.

The debate ended with closing remarks from Ms Stella Kyriakides, Commissioner for Health and Food Safety, highlighting the importance of the issue, the need for us to work together and the action to be taken, while promising to “make concrete and tangible improvements in the area of rare diseases and stand before [MEPs] again in not-so-distant future and share with you how we have moved with this”.

https://www.eurordis.org/content/action-plan-european-parliament

Recording of the debate: https://multimedia.europarl.europa.eu/en/plenary-session_20211124-0900-PLENARY_vd

 

 

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