How often are we as carers – loved ones – asked how we are?
#IPF not only affects patients – it also puts a burden on caregivers and loved ones who often don’t receive the much-needed psychological support: “Both our worlds get smaller as the disease progresses: our friends seem to back away. They don’t know how to deal with the disease. Our social life is shrinking. How often are we as carers – loved ones – asked how we are?”(Maxine Flewett)