mobilemenuClose menu
Jazz4Rare online concert as a part of the World Rare Disease Day celebrations on 27 February

Jazz4Rare online concert as a part of the World Rare Disease Day celebrations on 27 February

05-02-2021

This is the second time The Borys Hero Foundation is co-orgasing a Jazz4Rare online concert

World Rare Disease Day celebrations will take place on February 27 at 19:00 at the YouTube’s channel of Emigration Museum. Please follow the link.

Everybody is invited to emigrate to unforgettable jazz states of mind filled with good dedicated to people and families affected by rare diseases.

The event will be hosted by Kamil Wicik and you will hear Joanna Knitter Blues & Folk Connection | Aretha.

Read more about the the Aretha project and the event here

Why jazz? Jazz has a positive effect on the body and soul, including those affected by rare diseases. The second premise is that jazz music is often improvisation, it is a mixture of talent, knowledge, happiness and intuition. It is a constant step on the undiscovered land, exploring the unknown, it is often improvised expeditions in an unknown direction, just as the heart and mind tells. It's exactly the same with rare disease activities, and since jazz and rare diseases have so much in common, why not combine them?

Why the Emigration Museum? Again, drawing on our own experience, we know that the diagnosis of a rare disease heard by the child's parents is both the end and the beginning, a peculiar moment of the turning point that closes one stage and opens another, which is a kind of journey in the search for therapy, treatment or stabilization. In the overwhelming majority of cases, it is a journey into the unknown, without a clearly defined direction - it is emigration from the comfort zone to a new life, living with a rare disease. Therefore, there is no better place than the Emigration Museum in Gdynia to combine jazz and travel into the world of rare diseases.

Concert's organisers: The Borys Hero Foundation, Tata Studio and the Emigration Museum in Gdynia
Honorary Patronage: Marshal of the Pomorskie Region Mieczysła Struk, President of Gdynia Wojciech Szczurek
Media Patronage: Jazz Forum, Radio Gdansk, trójmiasto.pl

Tags

EU IPFFRare DiseaseEU IPFFVirtual event

EU IPFF

Search