Inspiration: PAHSSc publishes magazine ‘Nefes’ (Breath)
Our Turkish member organisation PAHSSc has launched an online magazine - ‘Nefes’ (Breath) - which will be published on a quarterly basis and will be targeting both people with pulmonary fibrosis as well as caregivers, doctors and the health industry.
"Our first issue comprises of testimonials of a PH, a Scleroderma and a lung transplant patient. There is also noteworthy input from Hans Dieter Kulla, the President of German PHeV and from Teresita de Guzman about her active lifetsyle and travels around the globe," says Kamil Hamidullah, President of PAHSSc. "We also tried to include some regulations concerning rights of disabled people in Turkey. Two eminent medical doctors and the Spokesperson of Rare Diseases Network have given us valuable information on Pulmonary Hypertension, Scleroderma and the Rare Diseases Network. Finally we have also added the testimonial of a parent whose young daughter suffers from Scleroderma. And last but not least, we have included a glossary for both Pulmonary Hypertension and Scleroderma. May our ‘Breath’ bring dynamism and optimism to those who read it."