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Person-Centered Care at the PF Patient Summit

Person-Centered Care at the PF Patient Summit

22-03-2021

One of the tracks at the PF Summit focus on the individual care of people with Pulmonary Fibrosis

A mandatory part of the treatment and care of Pulmonary Fibrosis is the collaboration between the carer and the individual patient. The person-centered care, where the patient is encouraged to practice self-management of the disease plays an important part in living with Pulmonary Fibrosis.

The Pulmonary Fibrosis Patient Summit has several presentations related to person-centered care on the three-day agenda:

  • Under the title 'Self-management of ILD' you will learn how patients can impact positively in their own care and how mindfulness may be a strategy towards improved self-management.
  • Psychological aspects of living with chronic disease is the title of a presentation which provides perspectives from both clinicians and patients of psychological impacts, and examine experiences & coping mechanisms around chronic disease & transplantation.
  • The importance of palliative care is another agenda point, where the role of Palliative Care in moderate to end stage Pulmonary Fibrosis will be explained Also it will be shared how professionals can impact beneficially on symptom management, quality of life, dignity and communication to patients and their loved ones and the impact of planning for patients and their loved ones will be expolained
  • The importance of care of ILD through a multidisciplinary and/or interdisciplinary approaches will be presented. The different roles within the team will and the benefits of a Multidisciplinary Team Aprroach for patients and relatives will be explained. Also the overall challenge of having a full MDT approach across Europe will be addressed.
  • Rehabilitation for PF patients is an important issue. The presentation will share a case study from a patient perspective of online Exercise during Covid-19. Explain the clinical benefits of Pulmonary Rehabilitation and provide an overview of the development of Pulmonary Rehabilitation & its practical benefits.
EU IPFF

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