Updated EU-IPFF Benchmarking Report: Call to action upon European policy-makers
“The Benchmarking Report comes with concrete recommendations on how patient care can be improved both for those living with IPF and their families. The healthcare sector is currently experiencing a high level of political attention. We believe we have a unique opportunity to make a significant change in IPF care, and our ambition is to build a more resilient European healthcare system. We hope that the updated Benchmarking Report can make a contribution towards this goal and influence healthcare decisions to ensure that every patient has an equal opportunity to access quality information and care,” says Steve Jones, EU-IPFF President in the foreword to the updated EU-IPFF Benchmarking Report.
In this updated version MEP Cristian Buşoi, Chair of the European Parliament’s Committee on Industry, Research and Energy Rapporteur of the European Parliament for the EU4Health Programme 2021-2027, provides a foreword stating that non-communicable and rare diseases, including respiratory conditions such as IPF, constitute a major public health challenge and need to be a priority under the next health programme. Given the nature of IPF, which is a condition affecting mainly people over 65 years old, more needs to be done to protect this already at-risk group, especially in pandemic times and health crises. This can be achieved by streamlining specific measures and specific guidelines with tailor-made recommendations.