
	25-03-2022

Welcome to EU-IPFF's Newsletter March 2022

As a organisation dedicated to people, patients and health the EU-IPFF stands with the people of Ukraine, a innocent population suffering dire oppression and harm - we fully support the statement of Eurordis and join the many other organisations and governments across the world that condemn this unjustified war.

Editorial by President of EU-IPFF Steve Jones

Welcome to our first newsletter of 2022 which looks back on 2021 and details some of our plans for 2022. With Covid-19 still impacting the world, we continue to urge governments and health systems to recognise the vulnerability of pulmonary fibrosis patients, to call for global vaccine equality and to alleviate the isolation of PF and transplant patients by providing new antibody treatments.

I hope you all enjoy this newsletter and will attend our upcoming 2^nd series of webinars. Also, whether you are a patient, carer, or healthcare professional please save the date for the 2^nd European Pulmonary Fibrosis Patient Summit, which will take place virtually on the 3^rd to 5^th of November 2022.

Our federation is dedicated to serving the patient community of the whole of Europe. The devastating events in Ukraine have obviously not only affected its pulmonary fibrosis patients, and its dedicated respiratory healthcare professionals but the entire population of the country. This conflict is and will impact life in and the economies of all of Europe. A Europe where health care systems already struggle to cope with the many rare, uncommon, and complex chronic illnesses as well as the everyday health issues of their populations. Therefore, we look to the return of peace and doing what we can to serve all our patient communities.

Steve Jones

New webinar series to be launched on 28th March

The EU-IPFF is proud to host a series of six webinars taking place during 2022, building on the success of our 2021 webinar series.

How did I get pulmonary fibrosis?

This is the title of the first webinar, where Dr. Simon Hart (photo) will give an overview of the causes of pulmonary fibrosis, the process and the symptoms of the disease.

Please register and subscribe to get details on the full 2022 programme

^{This series of webinars are kindly supported by a unrestricted grant from Boehringer Ingelheim and the Roche Group}

Save the date for the EU-IPFF patient Summit on 3rd-5th November 2022

Help PF research by taking part in clinical trials

Clinical Trials aid the development of new treatments and a possible cure as well as supporting efforts to improve health care and research and patients participating in clinical trials benefit from receive regular and expert health care with close monitoring of the disease

This is Living Campaign

The EU-IPFF with many other and varied Patient Organisations across the world are supporting the This is Living campaign which is aimed at outreach to patients with chronic illnesses. A global effort its aims to empower and inspire patients and to inform the broader community about chronic illness.

As the world emerges from but continues to struggle with the Covid-19 pandemic those with chronic illnesses were disproportionately impacted as they struggled both with their illness and the extra burden and isolation of Covid-19.

_{This is Living campaign is supported by Boehringer Ingelheim}


	Member News

Welcome to a new member of the EU-IPFF

We welcome our new member the Romanian Pulmonary Fibrosis Patient Organisation to the EU-IPFF. The EU-IPFF now have members or partnering contacts in over 25 countries.

The Romanian group is led by both patients and their loved ones and health care professionals delivering services and information to the Romanian Pulmonary fibrosis community - details of which can be found via their website.


	Sponsor News

We welcome a new sponsor

The EU-IPFF have a strong commitment to working with all stakeholders and a ethos of partnership with industry, so we are delighted to have CSL Behring join our long established and committed group of corporate sponsors.

More details on CSL Behring and our other sponsors at the sponsor page

Contact: secretariat@eu-ipff.org