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What we do

EU-IPFF works in various ways to raise awareness of the fact that Pulmonary Fibrosis is a devastating disease for both the people affected by it and their relatives.

We set up awareness campaigns, develop material for carers, doctors and patients, arrange webinars and summits with professionals and specialists sharing their research, thoughts, knowledge and enthusiasm to really make a difference in the PF area.


A series ofEU-IPFF webinars. Everybody can join to meet professionals presenting and discussing the most relevant topics.

Patient Summits

Bringing together patients, healthcare professionals, policy makers and industry representatives.


Campaigns to create awareness of Pulmonary Fibrosis

Benchmarking Report

The EU-IPFF have developed two editions of its benchmarking report to compare diagnistics, treatment and care of PF patients all over Europe.

The consultation guide

We develop material for doctors, carers and patiemts - the Consultation Guide is an example

IPF Charter

The aim of the Patient Charter, a patient–physician initiative, was to develop better care based on perceptions of patient advocacy groups regarding inequalities and unmet needs in IPF care