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Use the #MyPFstory hastag

No one can talk about a disease better than those who live with it and experience its effects every day. PF patients, their families and the medical professionals that help them, are the best advocates to raise awareness and create a better understanding of the disease. We encourage everybody who has experience with PF - as a patient, carer or healthcare professional – to share their personal story and knowledge on social media by using the #MyPFstory hashtag.


  • Raise public awareness about PF in Europe through personal stories from patients, doctors, nurses and carers.
  • Share facts and data about the disease to create a better understanding of its symptoms and ways to diagnose it.
  • Our campaign encourages Advocate for better access to treatment and understanding of PF.
  • Make a difference for PF patients and those who care for them.

Watch one of our campaign videos