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Below we present various tools to be used by patients, relatives , health care staff - articles - guidelines - reports - clinical trials information and stories which might be helpful.

If you become aware of useful tools we could present here - please send an e-mail to randi.krogsgaard@eu-ipff.org

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Consultation guide

Consultation guides to Patients and Health Care Professionals

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Consultation guides to Patients and Health Care…

The Consultation Guide for patients is in different languages and in short video clips

How treatment burden affects the carer: the experiences of three individuals, a mother, a daughter and a husband

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How treatment burden affects the carer: the…

In this issue of breathe, CEO of EU-IPFF Liam Galvin talks about his life with his wife, Phyl, who passed away from idiopathic pulmonary fibrosis…

Lung transplantation: the patient view from either side of the operating table

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Lung transplantation: the patient view from either…

The experiences of two patients: one waiting for a lung transplant, the other a lung transplant recipient, published in Breathe on 5 March 2021

The journey to diagnosis in patients with pulmonary fibrosis

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The journey to diagnosis in patients with…

Infographic and videos in different languages now available

The ideal IPF diagnostics path

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The ideal IPF diagnostics path

Please watch videoes on the ideal diagnostic path for idiopathic pulmonary fibrosis (IPF)

Finding trials

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Finding a Trial To help you find clinical trials that may best suit your particular needs, use the filters on the left-hand side of the page below. …

#PFSUMMIT21 - Video recordings of the sessions

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#PFSUMMIT21 - Video recordings of the sessions

Please find links to videos of the #PFSUMMIT21 First PFSUMMIT Day 23 April 2021 Opening Session Mechanism of action of fibrosis and new insights…

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Video recording of webinar IPF & Cancer

EU-IPFF Webinar on IPF and Cancer based on the results of the European initiative DIAMORPHOSIS, held by Francesco Bonella, MD PhD, Ruhrlandklinik…

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Webinar 1 December 2020: COVID-19 and Pulmonary…

At the webinar Prof. Gisli Jenkins from University of Nottingham, presented research and advice regarding COVID-19 and Pulmonary Fibrosis followed by…

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Video recording from EU-IPFF webinar 20 January…

EU-IPFF Webinar on Progressive ILD and Comorbidities held by Michael Kreuter, ILD Center, Thoraxklinik, University of Heidelberg and German Center for…

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Webinar: Genetics in ILD - Genotypes, Phenotypes…

Another well visited EU-IPFF webinar - this time on Genetics in ILD - Genotypes, Phenotypes and the Future. Please also find the link to the survey…

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Video recording of fourth EU-IPFF Webinar on…

The webinar took place on 17 March 2021

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