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Steve Jones, President of EU-IPFF and PF patient:

“It is vital to raise awareness of PF. More people die from pulmonary fibrosis than some well-known types of cancer, but few people have ever heard of the disease. Patients face tough challenges due to slow diagnosis and difficulties in accessing treatments and supportive care.

They fight both the disease and the lack of understanding among policymakers, doctors, researchers and the public. It is vital we do all we can to raise awareness of this cruel disease affecting so many European families and to encourage people to go and see their doctor at the first symptoms since early diagnosis and early treatment lead to better outcomes.”

What is Pulmonary Fibrosis (PF)?

Pulmonary Fibrosis (PF) is a progressive, irreversible, chronic lung disease causing scarring of the lung tissue with no known cure. About 400,000 people in Europe live with Pulmonary Fibrosis and some 100,000 patients die each year from the disease. The most common type of PF is IPF (Idiopathic Pulmonary Fibrosis), accounting for 200,000 patients in Europe. On average, PF patients die within 3–7 years of diagnosis.

PF Awareness Month and the "Breathing Life" Campaign

Despite PF being such a serious disease, there is still a lack of awareness, which can result in late diagnosis, losing valuable treatment time and, above all, time to enjoy life.

PF Awareness Month - again using the slogan “Breathing Life” in 2022 - wants to draw attention to PF, its implications and the changes it brings about in daily life as well as the physical and psychological strain that the disease places on patients and their loved ones - but also to the essential moments of lightness, normalcy and happiness that patients with PF still experience despite this burden.

EU-IPFF’s PF Awareness Month takes place each September and coincides with the globally recognised Pulmonary Fibrosis Awareness Month established to raise awareness of PF and help patients, carers and families who have been affected by this terminal condition. Additionally, EU-IPFF puts emphasis on key topics such as:

  • The disease Pulmonary Fibrosis (PF) / fibrotic interstitial lung disease (fILD)
  • Disease course and progression
  • Diagnosis
  • Treatment (pharmacological and non-pharmacological)
  • Self-care
  • Support

2022 PF Awareness Month Campaign

The 2022 campaign again picks up the “Breathing Life”- motto. This year´s campaign elements include:

Brand assets & campaign materials

Here you will find a set of campaign brand assets for download:

Web banner
Campaign poster 1
Campaign poster 2

Pins and stickers

Sticker
Magnet

To support your local awareness campaign, we are happy to provide you magnetic pins and stickers of the “Breathing Life” visual for free. This unique visual was specifically developed for the campaign and is an abstract representation of the human lungs that visualizes the scarring of the lung tissue, with natural elements such as flowers and leaves symbolizing the concepts of “life” and “breathing”.

If you want us to send you stickers and/or pins please fill in our order form through this link - to be returned by July 31, 2022 and we will arrange shipments to the address indicated on your order form.

 

HCP- and patient-facing videos based on the EU-IPFF Consultation Guides

For PF Awareness Month 2022 we will be launching a video version of EU-IPFF´s Consultation Guides:

The HCP-facing video (“A guide to Treating fILDs”) and the patient-facing video (“A guide to Living with PF”).

Don´t miss these valuable sources of information and recommend them to fellow patients and/or doctors!

Social media posting

Please help us raise awareness by sharing the campaign materials across your Social Media accounts and other online channels throughout the month of September!

The Social Media Content Plan is available for download here.

Materials are currently available in English only. By mid-August 2022, language versions with select posts will be available for download in the EU-IPFF member languages:

  • Bulgarian
  • Dutch
  • German
  • French
  • Greek
  • Italian
  • Norwegian
  • Polish
  • Portuguese
  • Romanian
  • Spanish

The visuals going with the posts are currently under development and will be made available for download on time.

When posting on your favourite Social Media, please use these hashtags #PFMonth #BreathingLife and #CurePF.

Thank you for spreading the word!

Patient and clinical videos

Be prepared for some moving patient stories telling the human side of Pulmonary Fibrosis.

In these short videos, patients give insight into their hopes for new treatments and research, how PF has changed their lives, and / or daily activities that make life more bearable. You will also find strong statements from top clinicians sharing why they support the campaign and giving specific advice to patients, caregivers and fellow healthcare practitioners.

Yoga & meditation sessions: Laughter yoga, traditional yoga and meditation

Throughout PF Awareness Month, we will be offering free yoga and meditation sessions (2 online classes per week) tailored to the needs and capabilities of PF patients. Meditation and yoga both demonstrably improve general well-being, reduce stress, increase energy levels, and improve quality of life. Yoga furthermore improves breathing and lung capacity. True to the motto "laughter is the best medicine", for this year we have decided to include one laughter yoga session per week. Once a week, laughter yoga instructor Marian Reilly will teach us how to bring more laughter to our lives, while chair yoga & eye meditation instructor Samantha Nier will lead on the second session of the week.

The full overview of the YOGA sessions during PF Awareness Month will appear upon registration.

Register here

Sponsors of PF Awareness Month Campaign 2022
EU IPFF

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