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Influencing European Health Policy on PF

EU-IPFF works closely with partners and stakeholders to raise awareness among European Health Politicians of Pulmonary Fibrosis and to document the health care issues related to the disease.

This is for example done by contributing to document how people are diagnosed and treated all over Europe.

Please find the results of our efforts here.

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A BREATHE Vision for 2030

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A BREATHE Vision for 2030

The Breathe Vision for 2030 reflects changes that lung patients want to see in their lives in the coming years. This initiative is led by a number of…

A Snapshot of IPF Care in Europe

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A Snapshot of IPF Care in Europe

The EU-IPFF Benchmarking Report National IPF patient organisations have capitalised on this growing political focus, joining hands to drive policy…

Declaration on IPF

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Declaration on IPF

In April 2016, a Written Declaration on IPF was launched with the support of 16 Members of the European Parliament (MEPs). The Declaration aims to…

Discussing treatment burden

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Discussing treatment burden

Healthcare professionals should help patients to reach informed decisions about treatments in order to maximise benefits while minimising treatment…

EU-IPFF Benchmarking Report 2020

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EU-IPFF Benchmarking Report 2020

The content of the Benchmarking Report represents the views of the authors only and is their sole responsibility. The 2020 Benchmarking Report is the…

EU-IPFF Benchmarking Report Training Sessions

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EU-IPFF Benchmarking Report Training Sessions

With a view to driving evidence-based policies, the European Idiopathic Pulmonary Fibrosis & Related Disorders Federation (EU-IPFF) commissioned a…

French Health Authorities publish IPF National Protocol for Diagnosis and Care

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French Health Authorities publish IPF National…

The document that covers all aspects of IPF

Patient Reported Experiences and Delays During the Diagnostic Pathway for Pulmonary Fibrosis

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Patient Reported Experiences and Delays During the…

Frontiers in Medicine publishes Multinational European Survey

Pulmonary fibrosis patients should be given priority in COVID-19 vaccination programmes: A Joint Statement

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Pulmonary fibrosis patients should be given…

The European Idiopathic Pulmonary Fibrosis & Related Disorders Federation (EU-IPFF) and the European Reference Network on Rare Respiratory Diseases…

The IPF Charter

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The IPF Charter

Patient advocacy groups play an important role in supporting patients with chronic diseases and promoting better care. The EU-IPFF Charter for better…

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