Who we are
EU-IPFF serves as the trusted resource for a united PF patient voice by raising awareness,
providing disease education, advancing care, and funding research.
Our members
EU-IPFF has 21 member organisations representing countries all over Europe, who unite their voices in the European organisation sharing experiences, sharing knowledge and communicating about PF care and treatment in the various countries. In this way we create impact and influence on how the individual country handle the disease.
Our associated members
Executive board
Our membership consists of national patient associations from across Europe, which are represented on the EU-IPFF Executive Board or
within the General Assembly by IPF patients and family members.
EU-IPFF Secretariat
The EU-IPFF Secretariat is led by CEO Liam Galvin, former secretary of the EU-IPFF, and handled by a Patvocates team of consultants with a broad experience in patient advocacy, health policy and patient engagement in medical research.
Contact secretariat: secretariat@eu-ipff.org
Scientific Advisory Board
Professional Networks and Policy Partners
The EU-IPFF is partnered on a European and Global level with a variety of Professional Networks and Policy Partners working jointly with them, providing a voice for our patient community and supporting joint efforts in Awareness, Education, Policy and Research.
Support Groups
Across Europe and the world our members have forged relationships with local groups that support patients with pulmonary fibrosis whether physically or online – click below for a full list and contact details of groups who provide support to patients & their loved ones and who support the aims and objectives of the EU-IPFF.
Also if you want to be registered as a support group, please find the the registration form here.
Please visit our support groups here
Sponsors
The EU-IPFF was founded on an ethos of collaboration and co-operation, so we are proud to gratefully acknowledge the partnership, financial support and commitment to our patient community given by all of our sponsors.
